Pickleball match raises cash for Brookside boy with uncommon illness

Pickleball match raises cash for Brookside boy with uncommon illness

RISK. TODAY, PEOPLE PICKED UP PADDLES FOR A PURPOSE AT CHICKEN AND PICKLE IN OVERLAND PARK. IT WAS THE SECOND ANNUAL A CURE FOR CHARLIE PICKLEBALL TOURNAMENT. WE’VE BEEN FOLLOWING FOUR YEAR OLD CHARLIE FRYE ON HIS JOURNEY WITH A RARE NEUROLOGICAL DISORDER. FOR MORE THAN TWO YEARS, IT’S CALLED SLC 61. AND IT LEADS TO DEVELOPMENTAL DELAYS AND SEIZURES. CHARLIE’S FAMILY AND OTHERS ARE WORKING TO RAISE THE FINAL MILLION DOLLARS OF THEIR $4 MILLION GOAL TO FUND GENE REPLACEMENT THERAPY. TODAY WAS A VERY SUCCESSFUL DAY AND WE RAISED A LOT OF MONEY. AND I JUST FEEL REALLY GOOD ABOUT THE SUCCESS OF THE COMMUNITY IS SHOWING UP FOR US TODAY. IF YOU’D STILL LIKE TO DONAT

Pickleball match raises cash for Brookside boy with uncommon illness

Charlie Fry’s circle of relatives has been elevating cash to fund a treatment for the uncommon neurological dysfunction SLC6A1.

On Saturday, other people picked up paddles for a goal at Hen N Pickle in Overland Park. It used to be the second one annual A Remedy for Charlie Pickleball Match. For greater than two years, KMBC 9 has been following 4-year-old Charlie Fry, of Brookside, on his adventure with a unprecedented neurological dysfunction known as SLC6A1. It reasons developmental delays, behavioral demanding situations and seizures. Charlie’s circle of relatives and others around the nation are operating to boost the overall $1 million in their $4 million purpose to fund gene substitute remedy, which is able to treatment the dysfunction.Charlie’s mother, Kim Fry, is thankful for the group’s persisted beef up.“Nowadays used to be an excessively a success day, we raised some huge cash and we are simply feeling truly excellent in regards to the good fortune from the group appearing up for us,” she stated.In case you’d like to be informed extra or donate, click on right here.

On Saturday, other people picked up paddles for a goal at Hen N Pickle in Overland Park. It used to be the second one annual A Remedy for Charlie Pickleball Match.

For greater than two years, KMBC 9 has been following 4-year-old Charlie Fry, of Brookside, on his adventure with a unprecedented neurological dysfunction known as SLC6A1.

It reasons developmental delays, behavioral demanding situations and seizures.

Charlie’s circle of relatives and others around the nation are operating to boost the overall $1 million in their $4 million purpose to fund gene substitute remedy, which is able to treatment the dysfunction.

Charlie’s mother, Kim Fry, is thankful for the group’s persisted beef up.

“Nowadays used to be an excessively a success day, we raised some huge cash and we are simply feeling truly excellent in regards to the good fortune from the group appearing up for us,” she stated.

In case you’d like to be informed extra or donate, click on right here.

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